I’m mostly posting these pics for anyone out there who has a child with EE. This was a great alternative to a cake. Sy loved it and per usual was all smiles!
Our foodless cake consisted of wrapped boxes filled with fun goodies. Jordan used his mad skills to decorate the boxes into Sy’s beloved bowling cake!
We were able to put toothpicks in the candles and poke them into the boxes.
Still never complaining and all smiles... I love this boy!!
Cutting the first piece…
“Opening” the cake…
And of course, we couldn’t truly celebrate Sy’s birthday without a trip to the bowling alley!!
oh my goodness--this is just so precious. you guys are such amazing parents--and so creative! sy gets his great attitude from YOU TWO!! love you guys!
ReplyDeleteAbsolutely amazing, Heather. I'm glad you've found a good clinic for EE. What a precious, beautiful boy!!
ReplyDeleteaww that "cake" is precious! happy belated bday!
ReplyDeleteI found your blog through silly eagle books tweet.
oh my gosh so cute and creative and Sy is adoarable! I love it! :-)
ReplyDeleteI went to Cincinatti childrens because I am an adult with egid and ee, Dr. Kushner recommended Dr. Dellon in chapel hill NC. I have been going to him for the last year and he is wonderful. I am sure Putnam and Rothenberg will recommend someone close by, it's scarry, I know exactly what you are going through (and Sy too). And about the medicaid, you should be able to get your local Dr. to write the RX for elecare or splash even if it isn't in a nasal tube. Apfed has alot of recommendations on their site on how to go about getting the meds and formulas for him.
ReplyDeleteIt really takes a toll on the family...
Good luck and let me know if I can help you with anything, I have about 6 cams of elacare you can have.