Tomorrow, August 3, our community will be gathering around Silas and joining him on a 24-hour liquid diet fast. As we think about the place food has in our lives, we will pause and pray for Sy and all those who are struggling with Eosinophilic Esophagitis. Please join us as we go through our day with only water or juice. We will work to help Sy find a way back to eating... It's only one day!
Showing posts with label elemental diet. Show all posts
Showing posts with label elemental diet. Show all posts
Tuesday, August 2, 2011
Friday, August 27, 2010
A way to cope!
For the last few weeks, Sy has started a strange habit. We were all ready to start eating (and drinking) dinner one night as usual. Before we began, Sy made a request: "Poppy, can I smell your food?".
At first I thought it would just make it more difficult on the little guy and started to refuse it. Then, I talked to him and asked him if he thought that might make it harder for him to not eat. He said no and that he just wanted to see what it smelled like. With hesitation, I pushed my plate over to him as he took one large, long sniff of the evening's meal. He finished and then stated, "Mmmm, that makes me full!". Without complaining or getting upset, he went on to drink his elemental formula with a smile. What kind of kid with this kind of illness does this?
Since Sy has started, he occassionally asks to smell the day's food items and it seems that it's helping him (somehow) get through his crazy no food diet. Like it wasn't enough to show us self-control by undergoing a liquid diet without a single complaint, he now shows us that with the right attitude, you can still enjoy food without putting it in your mouth. I think it's harder for all of us who watch than it is for him!
Thank you, God for one special little boy!
At first I thought it would just make it more difficult on the little guy and started to refuse it. Then, I talked to him and asked him if he thought that might make it harder for him to not eat. He said no and that he just wanted to see what it smelled like. With hesitation, I pushed my plate over to him as he took one large, long sniff of the evening's meal. He finished and then stated, "Mmmm, that makes me full!". Without complaining or getting upset, he went on to drink his elemental formula with a smile. What kind of kid with this kind of illness does this?
Since Sy has started, he occassionally asks to smell the day's food items and it seems that it's helping him (somehow) get through his crazy no food diet. Like it wasn't enough to show us self-control by undergoing a liquid diet without a single complaint, he now shows us that with the right attitude, you can still enjoy food without putting it in your mouth. I think it's harder for all of us who watch than it is for him!
Thank you, God for one special little boy!
Monday, July 19, 2010
Sy’s Foodless Birthday!
Who can imagine a birthday without cake--nevermind for a 4 year-old who has once again been requesting a bowling cake for the past year! (He’s already had two bowling cakes in the past!) This will forever be a birthday to remember… Sy turned 4 on July 6th and we wanted to make it extra special since our boy still cannot eat food. His request was to visit his Grammy & Paw Paw in SC and to go to the bowling alley.
I’m mostly posting these pics for anyone out there who has a child with EE. This was a great alternative to a cake. Sy loved it and per usual was all smiles!

Our foodless cake consisted of wrapped boxes filled with fun goodies. Jordan used his mad skills to decorate the boxes into Sy’s beloved bowling cake!

We were able to put toothpicks in the candles and poke them into the boxes.

Still never complaining and all smiles... I love this boy!!

Cutting the first piece…

“Opening” the cake…

And of course, we couldn’t truly celebrate Sy’s birthday without a trip to the bowling alley!!
I’m mostly posting these pics for anyone out there who has a child with EE. This was a great alternative to a cake. Sy loved it and per usual was all smiles!

Our foodless cake consisted of wrapped boxes filled with fun goodies. Jordan used his mad skills to decorate the boxes into Sy’s beloved bowling cake!

We were able to put toothpicks in the candles and poke them into the boxes.

Still never complaining and all smiles... I love this boy!!

Cutting the first piece…

“Opening” the cake…

And of course, we couldn’t truly celebrate Sy’s birthday without a trip to the bowling alley!!
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