Well, Sy recently was able to achieve his biggest dream ever!
Last month, we received a phone call inviting our family to the South Lake Kiwanis meeting to hear more about Sy's story and EE. They also mentioned that there would be a special guest that wanted to hang out with our son.
When we arrived, Sy got to meet his bowling hero, NORM DUKE! Sy has spent countless hours in front of the computer watching PBA World Champion, Mr. Duke, bowl perfect games and carefully watching his techniques. After watching, Sy always gets out his favorite foam bowling set and pretends to be Mr. Duke.
Norm had a chance to speak at the meeting and brought Silas up front for a few surprises. Sy received autographed pictures, stickers, an autographed bowling towel & t-shirts, Norm's autographed jersey from last season's PBA tour (that he wears all the time), and a recently released Norm Duke bowling instructional DVD (that has fantastic tips by the way). It was unreal!
After the meeting, Norm gave us another surprise and asked Sy to come to the bowling alley and bowl a few games! It was so much fun to watch this boy who has had food taken away get to indulge in his favorite sport with his favorite bowler. What a day!
Thank you to Gary Tolley (who orchestrated this event), the South Lake Kiwanis, ADvantageous Media Partners (who documented the whole thing), and Norm Duke for sharing your time and love with our Sy Sy!
Showing posts with label bowling. Show all posts
Showing posts with label bowling. Show all posts
Wednesday, January 5, 2011
Thursday, September 2, 2010
The Daily Commercial Newspaper Headlines

Check out the link above... This was a great story written by Roxanne Brown. We really appreciate all the time and effort she put into this (as well as the photographer). It's so amazing to have such support in our hometown. THANK YOU!!
Thursday, August 19, 2010
Sy's Channel 13 News Debut!
Channel 13 news came to our home today to help get the word out about Sy's disease and his love of bowling. They will continue to develop the story in the next day or so, but this is the short blurb they've posted so far! Click the video on the right and keep checking for the full story!
http://www.cfnews13.com/article/news/2010/august/139385/Rare-disease-keeps-child-from-eating-food
Monday, July 19, 2010
Sy’s Foodless Birthday!
Who can imagine a birthday without cake--nevermind for a 4 year-old who has once again been requesting a bowling cake for the past year! (He’s already had two bowling cakes in the past!) This will forever be a birthday to remember… Sy turned 4 on July 6th and we wanted to make it extra special since our boy still cannot eat food. His request was to visit his Grammy & Paw Paw in SC and to go to the bowling alley.
I’m mostly posting these pics for anyone out there who has a child with EE. This was a great alternative to a cake. Sy loved it and per usual was all smiles!

Our foodless cake consisted of wrapped boxes filled with fun goodies. Jordan used his mad skills to decorate the boxes into Sy’s beloved bowling cake!

We were able to put toothpicks in the candles and poke them into the boxes.

Still never complaining and all smiles... I love this boy!!

Cutting the first piece…

“Opening” the cake…

And of course, we couldn’t truly celebrate Sy’s birthday without a trip to the bowling alley!!
I’m mostly posting these pics for anyone out there who has a child with EE. This was a great alternative to a cake. Sy loved it and per usual was all smiles!

Our foodless cake consisted of wrapped boxes filled with fun goodies. Jordan used his mad skills to decorate the boxes into Sy’s beloved bowling cake!

We were able to put toothpicks in the candles and poke them into the boxes.

Still never complaining and all smiles... I love this boy!!

Cutting the first piece…

“Opening” the cake…

And of course, we couldn’t truly celebrate Sy’s birthday without a trip to the bowling alley!!
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