More Sy Media

Not to bore y'all but I know lots of folks don't get the newspaper anymore... Unfortunately, this link doesn't have the cute bowling pic that was actually in the newspaper article. Enjoy the read!

http://www.wotimes.com/articles/2010/09/08/news/top_stories/news03.txt

Sy Takes the Fight Against EE Worldwide!

Well, the word is getting out for sure. Thanks to people like you and our friends in the local media, Sy's story has reached out across the U.S. and has even crossed international borders!

If you just put in a search for "Silas Harger" in Google, here's an example of just a few places where  you'll find his story:

Florida (Orlando, West Palm Beach, Tampa, and more)
Massachusetts
New Jersey
Illinois
Arizona
Louisiana
Ohio
Alabama
and....Romania! (There's more, but we just can't read some of the languages they're written in!)

We've also found him on numerous other blogs, medical websites, manufacturers of allergy products,  and more...

So, the more the world gets to know Sy, we help so many others by raising awareness of this disease and it's effects on those who have it, those who love them, and those who work on finding a cure. If you happen to have just a few minutes, send his story to the best place you can think of. We've had people contact local social organizations, television shows, clubs, major news publications, churches, and other media outlets. I even had someone suggest contacting Food Network! It was a good laugh at first, but then, the more I thought about it, I would have to say that they've probably never had a show that would cater to a no food diet! I guess Sy could just smell all of Rachel Ray's dishes? How many ways can you prepare ice?

Anyway, give it your best shot. Send it to anyone. Send it anywhere. Let's give "Flat Stanley" a run for his money...

The Daily Commercial Newspaper Headlines

 http://dailycommercial.com/localnews/story/082510harger

Check out the link above... This was a great story written by Roxanne Brown. We really appreciate all the time and effort she put into this (as well as the photographer). It's so amazing to have such support in our hometown. THANK YOU!!

News Channel 13 Full Story

This is the 2-minute version of Sy's story. If you would, click on the link and watch. It will up his ratings!! It looks like the story is being syndicated nation-wide. Thanks to all of your for spreading the word!!

http://www.cfnews13.com/article/news/2010/august/143255/Silas-Harger:-The-boy-who-cant-eat

A way to cope!

For the last few weeks, Sy has started a strange habit. We were all ready to start eating (and drinking) dinner one night as usual. Before we began, Sy made a request: "Poppy, can I smell your food?".

At first I thought it would just make it more difficult on the little guy and started to refuse it. Then, I talked to him and asked him if he thought that might make it harder for him to not eat. He said no and that he just wanted to see what it smelled like. With hesitation, I pushed my plate over to him as he took one large, long sniff of the evening's meal. He finished and then stated, "Mmmm, that makes me full!". Without complaining or getting upset, he went on to drink his elemental formula with a smile. What kind of kid with this kind of illness does this?

Since Sy has started, he occassionally asks to smell the day's food items and it seems that it's helping him (somehow) get through his crazy no food diet. Like it wasn't enough to show us self-control by undergoing a liquid diet without a single complaint, he now shows us that with the right attitude, you can still enjoy food without putting it in your mouth. I think it's harder for all of us who watch than it is for him!

Thank you, God for one special little boy!

Sy's Channel 13 News Debut!

Channel 13 news came to our home today to help get the word out about Sy's disease and his love of bowling. They will continue to develop the story in the next day or so, but this is the short blurb they've posted so far! Click the video on the right and keep checking for the full story!

http://www.cfnews13.com/article/news/2010/august/139385/Rare-disease-keeps-child-from-eating-food

Donation Info.

Hey folks!

For those of you asking, we set up a trust fund for Sy. Here is the information to make a donation:

Silas A. Harger Charitable Trust
First Green Bank
1391 Citrus Tower Blvd
Clermont, FL 34711
(352) 483-9700

This account will only be used for expenses related to medical services and treatment and travel to Cincinnati.

Here's a pic of Sy making his opening contribution!