Caught in the Monster's Grasp!

This past weekend, we were hosted by the great folks at the Monster Challenge mud obstacle race. It was so much fun to come see a bunch of crazy runners doing some messy stuff.

As a blessing to our family, they invited Sy to be a guest of honor and helped raise funds to support his therapy. Sy had a great day and we were blown away by everyone's generosity. Here's a few pictures from all the fun!

Go team!

Check out this sweet trophy...

Sy even made friends with a Nordic warrior (and got to keep the axe!)

This is our friend and neighbor, Mr. Moses, making light work of the "Tarantula Traverse."

Smiles all day!

Our family just wants to thank all the people at Monster Challenges for allowing us to be a part of such a great event. We would also like to thank all the folks at Roe Family Chiropractic (especially Renee) for helping us continue Sy on a path to total healing!

Thanks again everyone! Sy had such a blast.

A Big Walking Tour for Little Feet!

Ok, ok, ok...so I'm a little behind on updating y'all. WiFi is crazy expensive in NYC. Also, with all the navigating I was doing on my phone, I was actually running out of data on our plan. So let's get started!

On Wednesday, we started our freezing rainy day at the 9/11 Memorial. Absolutely amazing! It was such an honor to be there and see it in its early stages of development. The kids asked a lot of great questions.

Our next steps were visiting the super historic St. Paul's Chapel (near the Freedom Tower) that was used as an emergency worker rest spot during 9/11.

Our hotel was near Madison Square Garden, so we got to see the waves of people that continued to pour out of that place.

We took a quick tour of 30 Rock and tried to sneak Heather into a show, but we missed the cutoff. Bummer!

On our way uptown, we stopped off at St. Patrick's Cathedral. With the amount of beauty in the structure, it's kinda sad that we've lost this form of worship in most of our churches today.

Heather's sister came to NYC to see the Anderson Live show, so we were later off to meet them at FAO Schwartz. The kids were okay with that meeting spot!

Since Sy is such a big fan of Apple (the food, silly), we had to take one cool elevator ride and snap a quick photo of his lighted up treat!

More posts to come! We love y'all!

Silent Awakening

As I (Heather) lay awake at 3:48 a.m., my house is absolutely silent except for the ticking of an old clock. It is so loud that it's almost a distraction. I never even realized that this clock made sound before and now all I hear is the consistent beating--tick, tock, tick, tock. The pulses have a calming and consistent rhythm to them--much like that of a heartbeat. With each passing "beat," my heart overflows and seeps gratitude for 2012. As I start with January and reminisce through each passing month, there were so many wonderful memories and amazing blessings. Through some trying circumstances, it was in many ways one of our greatest years. We witnessed actual miracles--including the wild birth of our son, Asher, and the beginning of healing for Sy on top of countless others. Looking back, we saw Jesus' hand over our lives daily with the steadiness and flow of an old clock ticking--always there but often missed through the hustle and bustle of our days. So as I sit here and listen to that soothing cadence, I am so thankful--  with every second that passes--for each memory, each relationship, and each blessing. Wow!

In 2013, I hope to have a better rhythm to my life and to take more time out to listen to that ticking of my heart--always there but often overlooked, yet so vital to my very existence. May it always remind me of my blessings. Thank you to each of you who journeys with us. We are so grateful!

We Just Couldn't Do It...

As we decompress from Sy's last visit to Cincinnati Children's Hospital and start over again on another long road with his health, we stop and realize the people and their blessings that surround us in the middle of our journey. We are blessed because of all of you who give of your prayers, you who give your time, you who give of your resources, you who read this blog, you who post thoughtful comments and send emails, you who give our little boy big hugs, you who take the time to understand Sy's struggles, you who make sure that Sy doesn't feel left out, and so much more...

Just tonight, as we talked on the phone, we began to try to understand what it is that God is doing with our family. We have many obstacles facing our family right now and we began to shed a few tears together as we try to figure out how to deal with Sy's health and the emotional toll it has on the both of us. However, we want you to know that we are able to continue to move forward because of the gracious encouragement that we receive from people like you.

Sy has come so far and it's almost unbelievable how many great options (like traveling to Cincinnati for top-notch treatment) have become available when we never imagined they would. We just want all of you to know that our family stands and moves forward because of your support... All I can say is we are humbled and more than appreciative of what all of you have done for us.

We just couldn't do it....without you! Thank you!

A Thanksgiving Day Request

Wow! There is so much to be thankful for this year!! I think this has been hands-down one of the most difficult years of our lives but has given us by far the most blessings. Here are just a few:

Jordan’s long time dream of becoming a firefighter has come true thanks to the amazing and humbling support of friends and family.

The birth of our third child when we didn’t think having another baby was possible and her good health despite her early arrival.

Essi starting school and watching her grow into her own little person.

And finally, our on-going journey with Christ… Intensely studying His attributes and how they should be reflected in us… And learning this most practically through none other than our 4 year-old son… Through a Kindergarten lesson, we've learned that "If I stay in Jesus, I will bear much fruit."

Love…Joy…Peace…Patience…Kindness…Goodness…Faithfulness…
Gentleness…Self-control

We have seen Silas display each of these attributes in ways we didn’t think were humanly possible. Of course, he is a typical 4-year boy and he has his moments—especially with his sister. :) But in regards to his disease and what he’s been dealt in his short life so far, we have seen the very hand of God on him. In reality, we have personally encountered Jesus himself. There is something to be said for having faith like a child; we as adults have so much to learn!

This is a little boy who has been sick since the day he was born was but has never complained… Never.

In fact, he presents so well that people have no idea the battle that rages in his little body. It’s easy to forget the severity of his disease when all he does is smile. Really. He even smiles when everyone around him is eating… and often times eating his very favorite things. We know that this is affecting him more than he displays but we pray over him and truly believe that God has given an incredible abundance of these “fruits.” Maybe God knew that in taking away the fruits he could eat, He would be blessing Sy more with the ones of the Spirit.

So, as we will be, we respectfully ask each of you on this major-food centered holiday to stop and say an extra prayer for Silas.

Say an extra prayer of thanksgiving for your health and your ability to eat.

And if you are really up for a challenge, maybe even withhold eating one of your most favorite Thanksgiving treats just to get a glimpse into our Sy Sy’s life. You may be surprised by what you experience! Comment and let us know how it goes.

Thanks for journeying with us and have a Happy Thanksgiving!