This Race Is "Snow" Joke! (Insert Groan Here)

We just wanted to take a moment to let you all know how important this upcoming race is to Sy and our family. It appears that all the registered racers have blown the doors off the original estimates! Everyone is ready to have an all out party this weekend!

Although we will not be able to quantify the amount of fun that everyone will have (playing in real snow, sliding on a huge inflatable slide, eating baked goodies, hanging with firefighters, etc.), we can quantify how much your participation means to Sy's therapy...

For every one 5K runner plus one Fun Runner, we will be able to purchase one of Sy's 25 pound bags of carrots or two bags of his yummy apples. If we didn't have you, Sy would still be on his yucky nutritional formula and possibly unable to eat by mouth. If we didn't have any of you volunteers this weekend, we would not be able to even have this event! We hope to thank everyone in person who has played a part, but there are so many of you!

This blog will never do it justice, but we SINCERELY THANK YOU ALL from the bottom of our hearts! Even before the starting gun goes off, this race has been a huge success. Thank you for being the volunteering hands and running feet of love! We are completely overwhelmed by it!

Say What, Doc?

For all of you who are praying for Sy's health, we have some HUGE news for you!

As some of you know, Silas underwent an endoscopy late last month in order for us to see any effects the Gerson therapy on his esophagus. With the number of grueling hours we have spent juicing, simmering, grinding, and washing, we had to get some sort of status on our direction. Is all of the energy and resources invested in this therapy really worth it? We've definitely had our moments of wanting to quit. But after starting Gerson, we've seen outward improvement, so we were expecting to see some inward improvement. That same day, the doctor told us that the pictures from the procedure showed that Sy's esophagus was indeed healing. Needless to say, we were thrilled with that news! However, we have been disappointed before with decent pictures of his esophagus and the biopsies later revealing that his disease was as active as ever. Talk about frustrating!

So, after this recent endoscopy, the real answers would lie in the results of his biopsies... So we've waited and waited for results...

Finally, I anxiously took the call and the doctor informed me that Sy's eosinophilic count was extremely low. How low? Low enough to be considered in normal range!!! 

How do you put a miracle into words? This disease supposedly has no cure and now his count is within normal?! This is nothing short of God using the Gerson Therapy to heal our boy. In fact, we were strongly advised against doing the therapy from the doctors a couple of weeks before this last endoscopy and we were almost overwhelmed with discouragement, but we've known God has placed us on this Gerson journey for a reason. Despite having heavy hearts, we clung to prayer and hope. And now this is the news we've been dreaming about... This is truly a miracle! We can't stop smiling.

So does this mean that all of the work of the therapy is over? No way. This confirms that all the work we are doing is worth the effort and we are moving in the right direction. Sy's body has had an extremely rough start, so must continue to slowly reintroduce new foods that will give his body the nutrition it needs. He still has 2-3 more years on the therapy so his body has a chance to fix what has been wrong for so many years. In reality, Sy may never eat "normal" but he'll certainly eat healthy. :) So now we will try to fill in some of the nutritional gaps with some additional foods from the therapy very slowly--starting with one food at a time. Needless to say, Sy is excited to taste something new! Just imagine that in time, it is possible that he may not have the same lunch and dinner every day!

Well, I need to mention again that Sy would not be where he is with his health and we could not continue the therapy without the love and support of those surrounding us. Let us just say that God is doing an amazing work here through you all! He has used you to perform this miracle. It has taken a village to keep Sy on the therapy and we are so grateful. There are too many of you to count, but know that the Harger family thanks you from the bottom of our hearts--with every carrot we juice (which is right around 1,000 carrots per month)!

I'm sure you all have lots of questions about what the doctor said, future endoscopies, etc. and we will gladly give more details later. We just wanted to get the news out asap. We love you all and please spread the word for anyone you know struggling with EE that there is an alternative way that seems to really work. (I'm still speechless...)

There has never been the slightest doubt in my mind that the God who started this great work in you would keep at it and bring it to a flourishing finishing on the very day Christ Jesus appears. (Phil 1:6)

Frozen Sweat?

Hey Everyone!

We have some exciting news to share!

If you haven't heard already, a great group of folks are organizing a really fun road race here in Clermont to help with the cost of Sy's treatment. They are even bringing 4 tons of snow into the sunshine state. Check it out!

Sy's Snowflake 5K

In just the few weeks of organizing this event, there have been some more than incredible happenings. We have some huge sponsors already and we will start posting some of these specifics soon. The starting momentum of this event is telling us that this is going to be much bigger and better than we hoped!

Come join the fun and don't pull a hammy!

Bountiful Harvest of Friends!

As you all know, Sy is hitting the Gerson Therapy full force! Even though he can only have a very few of the allowed foods and still lives on a mostly liquid diet of juice and soup, the amount of produce needed is unbelievable. For Sy's diet, this is the amount of organic produce he goes through on a MONTHLY basis:

150 pounds of carrots
48 pounds of apples
25 heads of romaine
4 bunches of swiss chard
16 pounds of green peppers
12 pounds of onions
35 pounds of tomatoes
10 pounds of leeks
10 bunches of celery
4 bunches of flat leaf parsley
60 pounds of potatoes
A few oranges for juicing (everybody needs a treat, right?)

Sy and his personal fridge of goodness

As anyone can see, it is not only easy to get buried under the sheer amount of produce, but by the cost. A family of six on a firefighter's salary cannot make this happen on their own. When we think about taking on Sy's health by ourselves, we can easily get discouraged, but so many people have rallied around Sy and our family to make sure this kid gets healthy! Here are a few examples:

A few months ago, we were blessed by a group of folks who saw our need for produce and went way beyond to give us a tool to help lessen our costs. We were surprised to find out that people had come together to help purchase a tower garden for Sy. It is one of the coolest things ever! Putting a garden in our yard is not possible, so this tower allows us to grow an immense amount of food in a small area. It also allows us to make sure that the food we are harvesting is 100% organic. We are still learning the ins and outs (still working on our green thumbs), but this blessing was huge and the hearts that were behind it are simply amazing. Check this thing out:

Isn't it beautiful?

If you have a moment, check out the Living Towers site and see these great gardens! Thank you, Jessica and the Living Towers peeps for helping us kick EE to the curb!

Another way that God has provided is through our local organic coop group. Because Laura (the gal who runs it) has a great heart, she told us that she was burdened to help Sy in some way. Both she and her husband have grown the local coop and have put hours into making it easy for people to get great organic produce at a great price. Even though some local stores carry what Sy needs in his diet, the prices can be a deterrent. Not only has she provided great convience and pricing, but she found a way to rally the other members of the coop to buy a portion of what Sy needs. Since money was dwindling down in Sy's medical account, this ENORMOUS blessing has allowed us to continue the therapy longer! Just when we were coming to the end of our rope, God brings people into our lives to show that He cares for Sy and that no obstacle can stand in His way.

If you are local to Clermont and you are in need of organic produce, please consider checking out the Clermont Organic Co-op site and start getting great prices! You guys are making a tremendous impact on Sy's health and our family! We love y'all!

Thank you all for taking the time to read this! See you soon!
Jordan

Details!!

We've had several people asking about what our next steps are going to look like for Sy so here it is in a nutshell...



After coming to the end of the road with traditional medical treatment, we were guided to a particular treatment plan that couldn't be more perfect for someone who can't eat...a therapy of food!!! I know this sounds crazy, but after more hours of research than we'd like to admit and comparing it to what I already know from my medical training, it made total sense. Sy has been on a no or very few food diet for the majority of two years. We have watched Sy develop signs that show his body is taking a toll (skin color, appetite, severe constipation, etc.). In passing, one would think that Sy's health is good (and it is compared to severely ill kids), but as a parent, you can tell when things just aren't right. Everyone knows that the body needs good, pure nutrition, and not the kind that comes out of a lab. Also with the amount of sugar Sy gets from his current artificial nutrition, there is the very real risk of developing type 1 diabetes in the near future. The bottom line is that Sy's body has an autoimmune & GI issue that we have only put on somewhat of a pause for right now. There are more things we could do to just "cover up" the disease, but we want real, lasting health. Sy's body has the systems in place to fight this disorder, but the cells of these systems need the right input to have the maximum healing output. Make sense?

The Gerson Therapy we are about to embark upon is anything but simple. Unfortunately, there's no shortcut and you either do it 100% or you don't. There are major costs of time and money, but this family will sell everything for the health of one of our loved ones. The folks from the Gerson Institute informed us that the amount of time it will take to prep, administer, and clean up each day will run about 8 hours!!! However, we have heard first-hand stories from people who have been amazingly healed from destructive diseases (like stage 4 cancers), but it does come at a great sacrfice. We will walk with him through this!

Below is an example of a condensed and simplified daily schedule for someone on this therapy. Sy's will be modified due to: his age, introducing very specific, organic food to his GI system, and to the systems that need repair. So here is what our new life will look like:

7:00 Wake up
7:15 Enema prep & administration
7:45 Special breakfast prep & juicing; prep and making of gruel*
8:00 Eat breakfast & supplements
8:30 Wash all produce for day (huge amount!), make enema concentrate, make special soup
9:00 More juicing, gruel, & supplements
9:30 More juicing, gruel, & supplements
10:00 More juicing, gruel, & supplements
11:00 More juicing, gruel, & supplements
11:15 Enema prep & administration
12:00 Special lunch prep, more juicing, gruel, & supplements
1:00 Eat special soup
2:00 More juicing, gruel, & supplements
3:00 More juicing, gruel, & supplements
4:00 Enema prep, administration, gruel, & more juicing
5:00 More juicing gruel, & supplements
6:00 Prep special dinner, more juicing, gruel, & supplements
7:00 Eat dinner, more juicing, gruel, & supplements
8:00 Enema prep & administration

*Gruel is made by slow cooking organic oats and then straining the them. The gruel is the white liquid that is left over. Sy will have to drink that every hour.

So this will be on top of my work/school/clinical schedule and Heather's pregnant mom/feeding/homeschooling/cleaning/shopping/dealing with me schedule. No big deal...ha! We repeatedly heard from people that you will easily lose a few years as you dedicate yourself to this and there is no way you can do this without help.

It's very easy to get overwhelmed by everything that is staring us in the face right now; however, we have been led through doors that have miraculously opened and brought us to where we are. We are confident that He will provide where we fall short. It's a new journey and we are excited to for Sy's healing and hope to be able to help others along the way.

To learn more about this therapy, check out these documentaries on youtube, Netflix or Hulu:

*Dying To Have Known

*The Gerson Miracle

*The Beautiful Truth

*Or "like" the Gerson Institute on Facebook.